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Drawing on extensive qualitative fieldwork with patients, carers and health professionals in Australia and the United Kingdom, this book provides a critical examination of the different spheres of dying, in social and cultural context. Exploring complex issues such as the politics of assisted dying, negotiating medical futility, gender and dying, the desire for redemption, the moralities of 'the good fight' and the lived experience of bodily disintegration, this book links novel theoretical ideas within sociology to cutting-edge empirical data collected in palliative and end-of-life care conte.

In the context of health service delivery, deprofessionalization denotes a trend towards a demystification of medical expertise and increasing lay scepticism about health professionals, suggesting a decline in the power and status of the medical profession. This process has been linked to increasing consumerism, the rise of complementary medicine and the emergence of the Internet. Drawing on data from in-depth interviews with prostate cancer specialists, this article explores their experiences of the Internet user within the context of the medical consultation. Results suggest that the deprofessionalization thesis is inadequate for capturing the complex and varying ways in which specialists view, and respond to, the Internet-informed patient. It is argued that the ways in which these specialists are adapting to the Internet and the Internet user should be viewed as strategic responses, rather than reflecting a breakdown in their authority or status. 'Enlistment' and 'translation' are presented as useful conceptual tools for understanding specialists' experiences of the Internet.

"This book provides a contemporary and comprehensive examination of cancer in everyday life, drawing on qualitative research with people living with cancer, their family members, and health professionals. It explores the evolving and enduring affects of cancer for individuals, families and communities, with attention to the changing dynamics of survivorship, including social relations around waiting, uncertainty, hope, wilfulness, obligation, responsibility and healing. Challenging simplistic deployments of survivorship and drawing on contemporary and classical social theory, it critically examines survivorship through innovative qualitative methodologies including interviews, photos, and solicited diaries. In assembling this panoramic view of cancer in the 21st century, it also enlivens core debates in sociology, including questions around individual agency, subjectivity, temporality, normativity, resistance, affect and embodiment. A thoughtful account of cancer embedded in the undulations of the everyday, narrated by its subjects and those who informally and formally care for them, Survivorship: A Sociology of Cancer in Everyday Life outlines new ways of thinking about survivorship for sociologists, health and medical researchers, and for those working in cancer care settings"--

Who's suffering? professional care and private suffering -- A labour of love? suffering in relation in informal care for the dying -- The practice of secrecy as a moral economy of care : affect, fragility and intergenerational suffering -- Racialisation and othering as everyday harm : embodiment, adoption, affect -- Practice of radical affectivity : evoking suffering as a healing modality -- Suffering survivorship : dilemmas of survival, wilful subjects, and the moral economy of dying -- Conclusion : suffering and caring assemblages

AbstractInformal care occupies a paradoxical place in contemporary societies. It is at once reified as an inherent social good, and minimised, devalued, and pushed to the margins. The current 'care crisis' is bringing these tensions into sharp relief, fuelling renewed interest in care and its absences across a wide range of disciplines. In this article, we present an overview of five key literatures for comprehending informal care, with a focus on issues of inequality and injustice. These bodies of scholarship—which, respectively, emphasise the political-economic, affective, policy, geographic, and ecological dimensions of informal care—together furnish a critical conceptualisation of informal care that both recognises care's social value, and underlines its embeddedness in systems and structures of oppression. Informal care, we show, evades easy definition, requiring a sophisticated array of critical concepts to capture its everyday complexities, avoid reductionism, and ultimately enable individual and collective flourishing.

Drawing on in-depth interviews with cancer patients, this article examines patients' perspectives on the nature of evidence and the degree to which different understandings of evidence inform decision-making about complementary and alternative medicine (CAM) and biomedical cancer treatments. Results illustrate the ways in which many cancer patients critically engage with questions about the nature of knowledge and the potential pitfalls of science.Their accounts can largely be characterized by a dialectical tension between individuation (espoused by many CAM therapies) and depersonalization (implicit in biomedical care); a tension mediated by individual cancer patient's prognosis and age. On the basis of the results we argue for a re-focusing of social theory to embrace an understanding of grass-roots ontological tensions seen in the experiences of individual cancer patients.The problematic nature of maintaining a narrowly defined `evidence-base' policy on CAM and cancer is also discussed in light of the data.

There are increasing calls from global health organisations for the promotion of traditional medicines (TM) as one method of addressing the health needs of populations in poorer countries. However, little research has been done to explore the interactions (and potential conflicts between) traditional healthcare systems and biomedical services. Drawing on semi-structured interviews with 46 cancer patients in Lahore, Pakistan, this article examines patients' experiences of the inter-professional dynamics associated with the range of traditional and biomedical cancer treatments. Results illustrate a complex set of 'cross sectoral' relationships. On the one hand, significant professional distancing was identified between certain traditional healers and biomedical clinicians, as was the deployment of discursive and regulatory gate-keeping tactics at a grassroots level. However, there was also evidence of selective strategic alliance between one traditional practice —
Dam Darood
, and biomedicine; a relationship deeply embedded in shared religious beliefs and their seemingly compatible therapeutic objectives. It is concluded that, for the development of culturally-appropriate health policy, there is the need for a multifaceted understanding of the socio-cultural processes underpinning the relationships between different treatment modalities.

Cancer is emerging as a key disease in India, but there has been virtually no research exploring understandings of cancer and practices of communication within oncology settings. This is despite the fact that the Indian context presents clinicians, patients, and family members with a range of unique challenges, including those related to disease awareness, interpersonal dynamics, and the use of traditional, complementary, and alternative medicines (TCAM). Drawing on a series of qualitative interviews with 22 Delhi-based oncology clinicians, in this article we examine clinicians' accounts of communication with their cancer patients. The interviews reveal the challenges of communication given cancer's relative novelty, cultural practices around collective negotiation, and rhetorical practices evident in advice-giving regarding TCAM. We conclude that with cancer set to become a major burden in India, research exploring competing forms of expertise, the politics of representation, and the nexus between traditional beliefs and techno-scientific development is urgently needed.